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Personal Histories Shared by Melorheostosis Patients
Disclaimer: The following information is shared by fellow melorheostosis patients about their own personal experience in dealing with this rare condition. It is in no way intended as a recommendation of any particular treatment, surgery, therapy or course of action, nor as a substitute for the expertise and judgment of your physician or other health care professional. |
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© Copyright 2001—2007 Melorheostosis Association. All rights reserved. |
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Personal Histories 2001—2004 |
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Personal Histories 2001 – 2004 To read Personal Histories from 2005 - 2008, click here |
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© Copyright 2001—2007 Melorheostosis Association. All rights reserved. |
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Name |
Child/Adult |
Date Submitted |
Area of Body Affected |
Location |
|
Adult |
12/16/04 |
Left arm |
Roanoke, VA |
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|
Adult |
12/5/04 |
Left forearm and upper arm |
Lafayette, LA |
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|
(Mary, mother) |
Child |
11/27/04 |
Left leg, foot, hip; right knee |
Princewick, WV |
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(Phyllis, mother) |
Child |
11/24/04 |
Left foot and leg |
Fort Polk, LA |
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(Angela, mother) |
Child |
10/13/04 |
Right foot, leg and pelvis; mandible |
Tulsa, Oklahoma |
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Adult |
9/25/04 |
Left hip to left knee |
Somerset, Colorado |
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|
(Marcellene, mother) |
Child |
9/24/04 |
Hips, right leg and foot |
Dallas, Texas |
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Adult |
7/30/04 |
Left wrist, arm and elbow; some evidence in shoulder |
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Adult |
7/15/04 |
Left foot and ankle |
Falls Church, Virginia |
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Adult |
6/20/04 |
Left leg |
Baird, Texas |
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Adult |
6/12/04 |
Both legs |
Flemington, West Virginia |
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Adult |
4/28/04 |
Right femur and right knee New information added 6/29/04 |
Philippines |
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Adult |
4/25/04 |
Left foot, ankle, leg and hip |
Loganville, GA |
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(Donna, mother) |
Child |
3/22/04 |
Left foot and left lower leg New information added 4/5/04 |
Milan, TN |
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Adult |
3/5/04 |
Right hand, arm, shoulder and collar bone |
Lake Worth, FL |
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|
Adult |
3/5/04 |