I was diagnosed with melorheostosis in 2001.   I have had an MRI scans, isotope bone scans and various consultations with specialists, most recently with Dr. Richard Keen in London.

I have tried strong pain killers, Fosamax, Alendronate, sodium tablets, together with miacalcin nasal spray. The pain is increasing so Dr. Richard Keen has recommended treatment with a drug called Zoledronate.  Has anyone else been treated with this?