Name : Beverly Morgan
Adult: 33 years old
City, State: Noble, IL
Areas of body affected: Left foot, femur and hip
My name is Beverly Morgan. I am 33 years old. I live in Noble Illinois. I have been diagnosed with Melorheostosis in my left femur and hip area as well as my left foot around the big toe. I had my first surgery on my left foot when I was 13. At the time the doctors did not know what I had. The surgery did not help. I still have continual joint pain and stiffness around the area by my big toe. I recently went to see a specialist in Indianapolis and it was that Dr. who made the Melorheostosis diagnosis. I have a lot of pain and stiffness in all my joints and a almost constant dull achiness around my hip and leg area. I find that extreme cold as well as stormy weather also increases my pain and stiffness. I recently have been having trouble with pain and stiffness in my hands and arms and will be going to Indy on the 10th of this month to see if it has spread to my arms and hands. I have some difficulty getting up and down because my knees and hips lock up on me at times. The biggest problem I have with this is the pain is a nuisance. I try to stay active and move my limbs as much as I can. So far it doesn't limit me but at times it slows me down a bit. The most frustrating thing to me is the lack of information out there about this disease. I was so happy to find this site. I have started taking a good vitamin as well as taking royal jelly, I'm not sure if this will help but I figure it can't hurt. I have found nothing over the counter that helps with pain thus far. I do not want to be on pain medicine. I also believe one must keep a positive attitude with this. This site helps to be able to talk about ideas and frustrations about this disease. Beverly.
New information added 1/11/06:
I'm updating my history. I am now 38 years old it's been years since I was diagnosed with melorheostosis. I had surgery on my left foot at the age of 13. They shaved the bone and I lost some flexibility in that foot joint. I still have pain. I've learned to deal with the pain; I've probably been on about every medicine imaginable. I have also been diagnosed with arthritis and the combination of the two makes it difficult. My left femur and hip area give me the most trouble with pain and limited flexibility. The pain seems to become worse after sitting for long periods of time. I have a lot of numbness and also a great deal of difficulty sleeping. It is so hard to get in a comfortable position that it's next to impossible to lay on my left side, which is affected by this disease. I am a strong believer in keeping a positive attitude with this disease. This website helps a lot. I live in Olney, Illinois.
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