Name : Darlene Pry
E-mail : firstname.lastname@example.org
Adult: 54 years old
Area(s) affected: left tibia, femur, knee
My name is Darlene Pry. Iím 54 years old. Today I learned that I have Melorheotosis. I was first told that something wrong when I was 14 years old. I have been monitoring this condition over the years with x-rays, but was never given a name for it until today. Itís a great feeling to finally know what I have. Even though Iíve learned there isnít a cure, Iím glad to finally know there is a name for it. I live in Port St. Lucie, FL and traveled to Gainesville, FL to finally get a diagnosis. I saw Dr. Scarborough who is an orthopedic oncologist. In the past I have been seen by orthopedic doctors but was never told what this is. They would say thatís itís unusual looking and to just have x-rays done every so often to make sure that it was not getting worse.
The Melorheotosis is in my tibia and femur of my left leg affecting my knee. When I was younger I was discouraged from participating in any physical activities that would cause any more pain than just from normal use. This has pretty much been a way of life. If my leg is straight for a long period of time my knee bothers me. If my leg is bent for too long, it bothers me. The only medications that have been recommended are anti-inflammatory.
Iíve had a full body scan and thankfully my left knee is the only area affected.
Being ďone in a millionĒ has made it difficult over the past 40 years to relate this condition with anyone else. Thank you for this website and learning that I am not alone.
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