Name : David Leggett
E-mail : firstname.lastname@example.org
Adult: 20 years old
City State: Winder Georgia
Area of body affected: increased activity on entire left side
Well, I guess it started just before I went to the Army. Before the physical exam to join I noticed that my left thumb didn't move like it should, but everybody said not to worry about it. During the physical exam I told the doctor and he also told me not to worry about it. That is was just from getting it jammed as a child. After going to Fort Knox I noticed almost day by day that my thumb didn't move as much as it had the day before. When I went to the doctor it didn't move at all and I was having trouble on the runs and marches because my left knee always seemed to give out. After 2 months and 6 days in the Army I got a medical discharge with the doctor saying it was simply calcium build-ups preventing my thumb from moving, but the doctors in my hometown of Hazlehurst, Georgia weren't so sure. After a bone scan the radiologist (thinking I had osteomylitis) noticed increased activity from my left jaw down to all toes on my left foot. Soon after I was sent to Dr. Munson at Crawford Long hospital in Atlanta, Georgia who diagnosed me with Melorheostosis. After that Dr. Hein an orthopedic doctor in Jesup, Georgia said that he also felt it was Melorheostosis. In January of 2001 I had surgery to remove bone from my hip and place it in my hand to keep my thumb in a "normal" position. In July of 2001 he went back into my thumb to fuse the joints together so I would be able to use my thumb as a "post" to hold objects. Even though he wasn't able to pull my thumb out as far as both of us would have liked, it is doing very well. Other than the normal pain that comes with the disease my "post" thumb works fine, even if it doesn't move. Now I'm trying to find somebody who will fix my elbow and knee. So if anybody knows of some good doctors in the Atlanta area please let me know at email@example.com also email me if you would just like to talk.
UPDATE: April/25, 2002:
I underwent a "test" nerve block for pain in my left thumb. The nerve responded well and I will follow up with a more permanent nerve block.
UPDATE: November 6, 2007:
Return to Personal Histories of Melorheostosis Patients