Name: Dayne (mother, Carla Parlier)
Child: 8 year old boy
City and State: Winston, GA.
Areas of involvement of melorheostosis: All of right side, upper and lower.
Personal history: Have seen several doctors, but are not helpful and lack of information of treatments of the disease.
I will be more than happy to talk or share with anyone that is serious about helping my son.
Thank you, Carla Parlier
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