Name :  Diane Jones

E-mail :

Adult:   42 years old

Location:  Friendswood, TX

Area(s) affected:  Left foot

Personal History:

When I was a teenager in high school, I started noticing that I had pain whenever I bent my middle toe backwards. It was not really bad, but I noticed it. I even had a doctor say that I had broken my foot before, but did not know it. In the summer of 1997, I finally had had enough of the crooked middle toe and pain that I experienced when I stepped on something that made that toe bend backwards. It had gotten much worse. I went to a doctor and had it x-rayed. After waiting about an hour for the diagnosis, he came back in and told me that they did not know what was wrong with me. It looked like I had broken the bone, but it was healed. Upon leaving, the Radiologist came running out into the parking lot to catch me...he had discovered what it was. After giving me the diagnosis of melorheostosis, (I thought he was crazy) he sent me home with my x-rays and instructions to go see my ortho who had corrected a broken tib/fib several years earlier. Well, he confirmed the diagnosis, but would not operate on it.  Told me that when I could not walk any more, come back.

Ten doctors later, I found a wonderful ortho in Houston (Fondren Orthopedic Group) who looked at it and said he would fix it after he did some research on it. Lucky for me(?) I broke my ankle attached to that foot, and on my second surgery to fix the ankle, he also did a hammer toe correction on that foot.

It has now been about a year and a half, and I am starting to experience more problems with it. I will visit him again soon to see where we are...I am really considering amputation of that toe...


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