Name:  Jo

Adult Female

Age:  60

City and state:   Watsonville, California  (Central Coast)

Areas of body affected:  both legs, right upper arm

Personal History:

I was diagnosed October 2000 after pain in left leg.  It has been very difficult finding a doctor that knows anything about melorheostosis.  Currently I am seeing a doctor that specializes in arthritis.  She thinks that possibly my pain is from arthritis rather than melorheostosis.  My question to anyone that has been diagnosed with melorheostosis is:  what seems to trigger the pain?   I'm coming to the conclusion that either doing too much and/or getting the affected limb cold.  I'm very eager to hear from everyone with this disease.

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