City and state: Watsonville, California (Central Coast)
Areas of body affected: both legs, right upper arm
I was diagnosed October 2000 after pain in left leg. It has been very difficult finding a doctor that knows anything about melorheostosis. Currently I am seeing a doctor that specializes in arthritis. She thinks that possibly my pain is from arthritis rather than melorheostosis. My question to anyone that has been diagnosed with melorheostosis is: what seems to trigger the pain? I'm coming to the conclusion that either doing too much and/or getting the affected limb cold. I'm very eager to hear from everyone with this disease.
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