Name : Terry Motley (mother); Krystal Austin (daughter)
Age: 18 years old
City/State: Brownsville, TN
Area of body affected: foot
E-mail: warr7309@bellsouth.net
Personal History:
Krystal had an accident on a 4-wheeler in June of 2002. She had sprained her foot. I took her to the hospital for x-rays to make sure her foot wasn't broken. I was relieved when the doctor said her foot wasn't broken, but was in shock when he said he had found melorheostosis. We are going to see a doctor at the Bone and Joint Clinic in Jackson, Tennessee. I don't know what to expect since it is such a rare disorder. I just don't know where to find a doctor, that can help her. Can anyone help us?