Name :  Terry Motley  (mother); Krystal Austin (daughter)

Age:  18 years old

City/State:  Brownsville, TN

Area of body affected:  foot


Personal History:

Krystal had an accident on a 4-wheeler in June of 2002.  She had sprained her foot.  I took her to the hospital for  x-rays to make sure her foot wasn't broken.  I was relieved when the doctor said her foot wasn't broken, but was in shock when he said he had found melorheostosis.   We are going to see a doctor at the Bone and Joint Clinic in Jackson, Tennessee.  I don't know what to expect since it is such a rare disorder.   I just don't know where to find a doctor, that can help her. Can anyone help us? 

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