Name : Lynette S.
Areas affected: hands, right side of body
Name Lynette, adult diagnosed at 16 at RPA Hospital, Sydney,
Australia. Had symptoms from earlier than 1 year old. Affected in both
hands, with ring finger on right hand deformed, with muscle loss in
right arm and back, right leg and foot. The whole right hand side of
body is shorter than the left. When newly born, no problem appeared to be there.
One doctor thought the shorter right side was as a result of a mild
case of polio. Second person diagnosed in Australia in 1962. Although
both carpal tunnels have been surgically treated, the left ankle fused
and spinal surgery for a cyst on the spinal chord, none of this was
considered to be treatment for melorheostosis. The right ankle fused
itself. I am sending this on behalf of my sister, with her
Return to Personal Histories