Name Mary Berlier

E-mail :

Adult:   56 years old; diagnosed at 26

City, State:   Indianapolis, Indiana

Areas affected:   Right side of body

Personal History:   

I was diagnosed while in the US Navy, after my right shoulder appeared abnormal in a chest x-ray. Had x-rays, bone scan and discover disease affected the entire right side of my body. Was not made aware that it was progressive or debilitating at the time. Lately, have noticed a large bony lump in my right forearm, which is getting larger with time, and painful intermittently, and another in my left upper arm. Would like to be included in your organization, and any information you can share with me about this condition would be greatly appreciated. Thank you.


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