Name of patient  Melanie Herrington
Email address:

Adult:  35 years old
Location:  Sumter, S.C.  
Area(s) of body affected:   Right foot
Personal History:

I was diagnosed with this rare bone disease this past Friday. Back in January of this year, I noticed that my ankle was swollen and it hurt. It had pitting edema in it. I worked at a doctors office at that time and I asked a nurse what she may think it was; she told me to elevate it with cold compresses; keep an eye on it. Well, it never went down and the pain was constant-dull aching pain.  So, being that I'm in my thirties, and smoked in the past not to mention my blood pressure was on the high side; very peculiar to me, I had the thought of it being a problem with my heart. Ran tests & those came back normal. Finally, I went to a Podiatrist. He diagnosed me with a fractured metatarsal bone;  just told me to elevate & take OTC pain meds. & wanted to see me back in 2 weeks.  2 weeks passed & no change on the x-ray.  He told me to keep doing what I was doing.  See me in 2 weeks. Again, 2 weeks passed & no change. So, we did this for another month or so, he took me out of work for a week to keep off of it; return visit back; no change for the better on the x ray.

The beginning of June, he finally sent me to another specialist in a bigger city. That doctor, automatically put me in a boot & said he would see me back in 6 weeks. After 6 weeks of wearing the boot, the x-ray did not show anything different. That's when he said that this was not a fracture, it's Melorheostosis & Drapyseal Cortical Sclerosis. He advised me to get online to research this rare bone disease because he really could not answer any questions that I had. I am scared and curious as to what this has in store for me. I understand that it could be worse; it's the pain, crippling, deformity, and the possibility of other severe results from this disease that have me taken aback. 
Thanks for this web site. Hopefully, with today's modern technology, someone, somewhere will find a diagnosis or treatment for this disease. We all just have to keep the Faith!!  

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