Name : Nadia Swindle
Adult: 21 years old
Location: Dundee, Scotland
E-mail : firstname.lastname@example.org
Areas of body affected: Right leg throughout
Diagnosed at age 15 in 1997 by Dr. Al-Dadah in Crosshouse Hospital, Ayrshire (Scotland).
Treatments tried were bisphosphonates (unsuccessful), Calcitonin by nasal inhalator and also by injection (nasal spray was not successful and injection caused a strong respiratory reaction so was discontinued).
Currently on no medication and relying on herbal method for pain relief. Herbal method used is Black [onion] Seed (Oil and Seeds) please see www.sweetsunnah.com for more details on this herb.
Symptoms: Constant pain on all affected areas of right leg. Temporary periods where walking is almost impossible. Sleeplessness due to pain and unable to get a comfortable position. Lethargy and depression are normal in winter months.
Pain relief: By distraction method ( where you concentrate on ignoring the pain) though this is very tiring - painkillers leave me feeling numb, dizzy and forgetful. Hot water bottle or warm cloth soaked in herbs and oils. Hydrotherapy by foot spa and bath spa. Eating Black [onion] Seeds and putting Black seed oil on affected areas. Otherwise known as Kalonji available at continental food stores.
Comments: I was also planning to set up a British website for Melorheostosis once I figure out how to use Java or other good applications so I will let you all know if and when. I commend the author of this site on its progress! I am pleased to see people are using it.
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