Name : Shelby Virginia Canady (Mother - Jennifer Sykes)
E-mail : firstname.lastname@example.org
Child: 13 years old
Location: Watha, NC
Area(s) affected: Right leg
Shelby was diagnosed at age 5 or 6, but was misdiagnosed at 2 months. The
doctors thought it was a lymph node issue, and it would resolve itself. A very
observant internal medicine doctor noticed her leg, and asked if he could look
at it (he was treating my son at the time). He wrote the word "melorheostosis"
on a piece of paper, and asked me if I knew what that was. Of course I didn't,
and he referred us to an orthopedic specialist. The local orthopedist sent us to
Chapel Hill, who told us there wasn't anything we could do about it. Meanwhile,
Shelby's right leg was not growing as fast as her left one. This was causing
pain in her back, and her hips were out of alignment. We corrected the
discrepancy with a shoe lift (started with one inch and is now an inch and a
half), but she was still in pain. The chiropractor helped somewhat, but referred
us to a sports medicine clinic. They referred us to Dr. Fitch at Duke, who
recommended growth plate removal surgery on her left leg (the good one). Shelby
had a successful surgery on May 23, 2008, and it appears that her right leg is
catching up with the left one, and she's not having as much pain. Dr. Fitch
Thinks that when Shelby is done growing, her leg discrepancy will be a half an
inch or less.
We would love to hear if anyone else had had this surgery and if it has worked. Feel free to email us any time.
Return to Personal Histories