Name :    Stephanie

E-mail :

Adult:     21 years old

Location:  Nederland, Texas

Area(s) affected:  Pelvis, right leg, right knee, lower back

Personal History:

I was diagnosed in November of 2001 when I was 15 years old.

Well where do I start.  It hurts very bad, some days it hurts to get out of bed.  I constantly feel my bones grinding and you can hear all my bones pop.  I periodically have to pop my knee in place.  It hurts so bad  it makes me cry and I think why me, why us??  I am 21 years old and I feel like I'm 50.  My activities are limited and I don't get to do and enjoy the activities my friends do.  I can't stand or walk for long periods of time. My legs sometimes give out.  I haven't had too much luck in the doctor department.   I have been denied treatment more than I have received treatment.  I have internal bleeding in my stomach due to the harsh effects of Advil, Tylenol, etc.  It just feels so hopeless sometimes. Anyone in the Texas area or anywhere that can help me, please email me.   I will respond. 


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