Name :     Susan Rutherford

E-mail :

Adult:     25 years old

Location:  Edinburgh, Scotland

Area(s) affected:  Right hand and wrist

Personal History:

Diagnosed in 2008 after years of pain and lack of mobility in my right hand (in particular my middle finger which is noticeably deformed) I went to see my GP who sent me for x-rays. After these were sent back to her, she was still unsure of what it was so she referred me to a rheumatology specialist, who was also baffled as to the exact diagnosis. After researching the condition, she got in touch with Prof. Wordsworth who diagnosed Melorheostosis.

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