Name :    Trina B.

E-mail :

Adult:     33 years old

Location:  American Canyon, CA

Area affected:  Left femur

Personal History:

My name is Trina and I am 33 years old.  I live in American Canyon, California.  I have had pain for about a year in my left femur that is progressively getting worse.  The doctors are baffled and after a biopsy of my bone in June have narrowed it down to Melorheostosis.  The pain in my leg is getting pretty bad and the only way for me to function is pain meds...lots of them.  And I am scared to get addicted.  The pain isn't muscular, its a deep "in the bone" pain.  I know nothing about this disease and I'm very scared.  I am the mom of two great kids that I'm missing out on a lot with them because it's too painful to do.  I can't even go bowling without being in pain.

If there are any suggestions or help anyone can give I'd really appreciate it.

Thank you!


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