Name : Sailesh Thakrar
E-mail : firstname.lastname@example.org
Adult: 39 years old
Location: Originally Uganda, now England
Area(s) affected: Left leg, affecting hip, knee and ankle
My name is Sailesh Thakrar age 59 born in Uganda. I immigrated to
England in 1972 and was diagnosed with melorheostosis at the age of 20
at Stanmore Orthopedic Hospital by professor Bentley. The condition is
on my left leg effecting my hip, knee and ankle. My left leg is
slightly long by about an inch
In 1992 and 1997 I had some bone removed from my knee to release the
pain which professor suggested that the pain was travelling from my hip
downwards. I am sporty and was playing cricket 3 times a week during
summer period and badminton in the winter session. Initially I was
taking pain killers 4 times a day and than changed my routine to take
them when required and has been working.
The time came when the pain was getting worse external rotation on my
leg was getting limited. In April 2010 I had my left hip replaced at
Stanmore Orthopedic and I understand I was the 1st patient in United
Kingdom to have a hip replaced with my condition. The replacement was
successful although the leg length discrepancies remain.
In 2011 I gave up playing cricket not because of my condition but my age.
I still play badminton 2 hours a week and go to the gym at least 4
times a week just to get the movement in my leg. I get pain in my knee
when I have been sitting for a a long time and now mostly and regularly
during the night.
I am still working, driving and doing gardening on regular basis. I am
very keen not to give up of my routine despite the pain.
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