Name :     Sinead Hayes

E-mail :

Adult:      38 years old

Location:  Ireland

Area(s) affected:  Right leg

Personal History:

My name is Sinead Hayes.  I am 38 and living in Ireland. I have melorheostosis in my right leg. I had a hip replacement and growth moved off my knee.

I feel like it is progressing again causing pain on veins and other areas.  Has anyone got a recommendation for good pain relief?




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