I used to power walk lots of
5k’s and started having pain in my foot. Then the pain would turn in to
extreme numbness and feel almost like I had a quarter sized rock in my
shoe. I could not feel the entire left side of my foot...like after
you’ve been numbed at the dentist. From there, the nerve pain would
shoot down into my toes and I could barely finish the event. After a few
times of this happening I went to my doctor and x-rays were taken. The
results came back as melorheostosis on my second metatarsal of the right
foot (side note: a heel spur showed as well). I was prescribed meloxicam
which didn’t seem to help me. This was in 2018.
I saw a podiatrist who said
he’d never seen a patient with this disease and he only remembered what
it was from his schooling because of the “dripping candle wax” name. He
did not know what to do with me. I’m not sure what type of doctor I
should seek out for this. My pain has progressively gotten much worse
and I’m ready to do something about it. I live in a very rural area, so
seeing any type of specialist will involve travel. I have gotten good
shoes, but they only help so much. The pain comes without activity now
as in the past it was only when I walked quite a distance.
I’m concerned about how this
might affect my day to day activities and quality of life if it
continues to worsen.
I know there are others out there
much worse off than me and I feel for them! I found a Melo facebook
group with members from around the world. I think my next step is to
email my images and diagnosis report to “bone doctors” in my general
area to see if they would be willing to consult with me. Thank you for
your time!