Name : Lisa

E-mail : quinnie16@ 

Adult:  39 years old

City, State:  St. Louis, Mo.

Areas of body affected:  bone between the wrist and elbow, closer to the elbow, in left hand

Personal History:

I am 39 years old and I have had this bump on my arm for probably about 10 years now. But, over the years it has grown, not only larger on the main bump, but is also growing down my arm like a candle drips wax down its sides. My left hand has started to go numb a lot in the past 6 months so I went to an orthopedic surgeon, who by the way, told me I have stumped the medical profession, because he had never seen anything like this before. I got scared. I am going for an upper bone scan and an MRI next week because he sent my x-rays to a specialist and melorheostosis is  the disorder he came up with. So I don't have a lot more to tell right now, except when I asked if I could get this thing off of my arm he said yes and that they would probably have to shave it off but his concern is that my arm will be weak and could break easily for a while after surgery. Anyway, I'll keep in touch, probably won't know anything for about 2 weeks. Take care to all and it's nice to know there are others to talk to.  Pay it forward !

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