The Melorheostosis Association offers two ways for you to communicate with fellow patients and others interested in melorheostosis.  We hope you will join the conversation!

Melorheostosis Association Discussion Board – click here to post your questions or comments, respond to postings from others, share your thoughts and experiences, or just read what others are talking about.  

Melorheostosis Association on Facebook – click here to check out the Melorheostosis Association Facebook page.  Here’s how it works: if you are already a Facebook member, just login; if not, create an id and password .  When you get to the Melorheostosis Association page, you should become a “fan” so you can interact with other members.

If you have comments or suggestions, we would, as always, be happy to hear from you.  We would like to send a very special “Thank You” to melorheostosis patient David Leggett who has set up our Discussion Board and agreed to serve as Moderator.

Kathleen Harper

kathleen@melorheostosis.org