|
Personal Histories Shared by Melorheostosis Patients
Disclaimer: The following information is shared by fellow melorheostosis patients about their own personal experience in dealing with this rare condition. It is in no way intended as a recommendation of any particular treatment, surgery, therapy or course of action, nor as a substitute for the expertise and judgment of your physician or other health care professional. |
|
© Copyright 2001—2007 Melorheostosis Association. All rights reserved. |
|
Personal Histories 2005—2008 |
|
Personal Histories 2005– 2008 To read Personal Histories from 2001 - 2004, click here |
|
© Copyright 2001—2008 Melorheostosis Association. All rights reserved. |
|
Name |
Child/Adult |
Date Submitted |
Area of Body Affected |
Location |
|
Adult |
4/13/08 |
7th and 8th ribs on left side |
Preston Lancashire England |
|
|
Adult |
2/20/08 |
Left forearm |
Missoula, MT |
|
|
Adult |
12/27/07 |
Left femur, knee and hip |
Falls City, TX |
|
|
Adult |
12/12/07 |
Left leg |
Brisbane, Queensland, Australia |
|
|
Child |
11/21/07 |
Both feet, both knees, left hand and forearm |
Santa Clara, CA |
|
|
Adult |
11/20/07 |
Right femur and knee |
Birmingham, England |
|
|
Adult |
Update 11/14/07 9/6/03 |
Right hip, right leg, right foot, right hand |
New —Steubenville, OH Pittsburgh, PA |
|
|
Adult |
11/7/07 |
Left foot |
Lexington, NC |
|
|
Adult |
Update 11/6/07 1/29/02 |
Entire left side
|
Winder, Georgia |
|
|
Child |
10/25/07 |
Left knee |
Fairland, Indiana |
|
|
Adult |
9/24/07 |
Both feet |
Chandler, AZ |
|
|
(Jeff and Jill, parents |
Child |
9/6/07 |
Right pelvis and hip area, fibula, ankle and one toe |
Egg Harbor, NJ |
|
Adult |
8/20/07 |
Right foot and leg up to hip |
Dhaka, Bangladesh |
|
|
Adult |
Update 7/8/07 8/28/2001 |
Left leg |
New —Upper Lake, CA San Francisco, CA |
|
|
Adult |
6/7/07 |
Right leg |
New Lenox, IL |
|
|
Child |
4/26/07 |
Right pelvis, knee, foot, and big toe |