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Personal Histories Shared by Melorheostosis Patients
Disclaimer: The following information is shared by fellow melorheostosis patients about their own personal experience in dealing with this rare condition. It is in no way intended as a recommendation of any particular treatment, surgery, therapy or course of action, nor as a substitute for the expertise and judgment of your physician or other health care professional. |
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© Copyright 2001—2012 Melorheostosis Association. All rights reserved. |
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Personal Histories 2011 - 2012 |
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Personal Histories 2011-2012 To read Personal Histories from 2001 - 2004, click here |
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© Copyright 2001—2012 Melorheostosis Association. All rights reserved. |
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Name |
Date Submitted |
Child/ Adult |
Area of Body Affected |
Location |
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3/7/12 |
Adult |
Left and right arms and hands |
Minnesota |
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2/23/12 |
Adult |
Right clavicle |
Sioux Falls, SD |
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2/18/12 |
Adult |
Left foot and lower leg |
Maryland |
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1/24/12 |
Adult |
Tibia and femur of left leg |
Port St. Lucie, FL |
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1/22/12 |
Child |
Right foot |
Dublin, Ireland |
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1/15/12 |
Adult |
Left ring finger/hand |
Crystal Lake, IL |
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12/8/11 |
Adult |
Left wrist, hand, fingers |
San Diego, CA |
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12/2/11 |
Adult |
Ring finger and pinkie finger on left hand |
Ashburn, VA |
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11/24/11 |
Adult |
Right foot |
St. Louis, MO |
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11/10/11 |
Adult |
Right upper leg, hip to knee |
Rochester, NY |
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11/10/11 |
Adult |
Right hand, right ulna, right shoulder |
Lewiston, Maine |
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11/3/11 |
Adult |
Right leg, knees; possibly hands |
Las Vegas, NV |
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10/22/11 |
Adult |
Right ankle, top of foot to second and third toe |
Corpus Christi, TX |
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10/20/11 |
Adult |
Right humerus, radius, ulna, wrist, index finger and thumb |
Hot Springs, AR |
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10/10/11 |
Adult |
Left leg |
Davie, FL |
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10/5/11 |
Adult |
Right fingers, hand, arm |
Manning, SC |
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9/17/11 |
Adult |
Left arm and leg |
Finland |
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8/23/11 |
Adult |
First and second rib on right side; First joint on index finger of right hand |
Gainesville, FL |
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8/15/11 |
Adult |
Right foot |
Sumter, SC |
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7/3/11 |
Adult |
Right leg |
Pune, Maharashtra, India |
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5/25/11 |
Adult |
Right leg and hip |
Tampa, FL |
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5/17/11 |
Adult |
Left forearm |
Raleigh, NC |
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5/12/11 |
Adult |
Left leg |
Argentina |
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4/27/11 |
Adult |
Right hand (5th metacarpal) |
Chandler, AZ |
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4/21/11 |
Adult |
Right side outer wrist including pinky and ring fingers |
New Bedford, MA |
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4/5/11 |
Adult |
Right hand and wrist |
Edinburgh, Scotland |
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3/1/11 |
Adult |
Femur |
Marysville, OH |
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1/22/11 |
Adult |
Right tibia |
Bothell, WA |